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Old 10-28-2013, 09:14 AM
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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first of all welcome to this site!

I have severe spasticity as well as neuropathic pain. I also experience that vibrating feeling occasionally in different parts of my body. Feels like a tuning fork to me. It's all part of my wonderful MS journey.

I was on gabapentin (neurontin) for the neuropathic pain, but didn't like the side effects. I have permanent numbness in toes and fingertips, and occasionally it spreads but then retreats back to the permanent sites.

Balance issues, cog fog, bladder/bowel issues, pain, it's all quite a ride.

the lumbar puncture will not always give you additional info...mine didn't.
And make sure you drink lots of liquids before your procedure. Plan to lie flat the rest of the day, and drink hi caffeinated drinks afterwards, like Monster. Helps avoid the dreaded headache. Only get up for bathroom break and meals.

Keep us informed-and keep a symptom journal with dates of onset, as well as questions for your docs. Good luck...hope you get an answer...many of us were given different diagnoses before it was nailed down as MS. It's a disease of excluding others before they decide on MS...
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"Thanks for this!" says:
ANNagain (10-28-2013), SallyC (10-28-2013), Synnove (10-28-2013)