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Old 10-28-2013, 01:31 PM
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Hands aren't great at mo, and I've posted on this topic plenty of times in other threads, so I'll be much more brief than is normal for me!

Basically it's time we as a community got behind the name CRPS. I know it must seem pointless to have the name change after so long, but it was a panel of medical experts - doctors and specialists - who decided it after much debate or the implications. It wasn't a snap decision by politicians or non-medics or a drug company... And I think the new name does make sense. There were valid reasons that RSD was thought to be outdated as a name, and that hasn't changed.

It seems to be predominantly the US resisting the name change, and it is the confusion of name that is leading to research findings not being shared etc.

I just don't understand why we can't accept the new name and get on with things. We need to be looking to the future, not continually looking back and digging our heels in over a name.

This condition is too important, and cruel, to risk its future as far as research etc goes. In most international research now it is called CRPS, although they do refer to all its previous names.

I know many of you liking the RSD name won't like my comments, and I'm sorry for that, but I am frustrated by so much resistance to change. If they changed the name again tomorrow, I'd abandon CRPS and embrace the new one in line with the medical community I am relying on to help me in any way they can, now or in the future.

Ouch

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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