Quote:
Originally Posted by catie
Jen,
Others have given you great advice. Both a journal and photos will be helpful. If you're able, take a supportive person with you to the appointment.
It took me 7 long, frustrating years for me to receive a diagnosis after my initial tests for MG were negative (antibody, EMG). A tensilon test and a positive response to mestinon sealed the diagnosis.
Please let us know the outcome of your appointment. 
Cate |
I was diagnosed by a neuro specilaist in the hospital. He said based on my symptoms he thought he knew what it was but wanted to do a test to make sure. He used the tensilon test and I responded. He started me on Mestinon in the hosp. and I responded to it also........That has led me on a merry-go-round of testing. All other tests have been negative so now none of the neuros around will treat me and my PCP says it must be all in my head. You are lucky you have a good neuro.
