There are MANY of us who've experienced this symptom. All I can suggest is to google it or if there is a search engine on this website use it (I am cognitively challenged & can't figure out how to utilize features of site)
DO NOT GIVE UP. No matter if it's MS or some other disorder, list your symptoms in a journal, check in to your body occasionally, and LIVE YOUR LIFE. Try your best to be your own advocate in the doc's office. Be an informed healthcare consumer.
When I was searching for a dx, I was obsessed with finding out what was going on.
There is often something going on...maybe MS, maybe not. Keep track of what's going on...then live as if it's your last day, with bliss and gratitude. I know that when we are feeling so bad it's difficult. But all of us can live life to it's fullest, even when we can't move and can only look around. Others who've been through He77 have taught me that we can make the best of even the worst situations, can learn something from it.
I am not lecturing...just kind of mirror-thinking. We all learn even as we post.
There are many in this world who are worse off than we, yet they make the best of what hand they're dealt. The challenge is to accept the hand and play it to the best of our ability. Sometimes we are successful, and sometimes we aren't. Doctors are well trained in their professions, but we know our bodies best and need to assert with physicians our input.
Keep us up to date as to what is going on and what the docs say...we all ahve experience on our side, which has taught me much here and given me such support in so many ways.