Quote:
Originally Posted by cait24
I suggest you go to a neuromuscular specialist at a large teaching hospital. MG is so rare most local neuro have never seen it. Definitely ask for the single fiber EMG.
A hysterectomy brought on my MG. Surgery is often a trigger. How do you respond to the heat? Most MGers get much worse in the heat, even a warm bath. I can't even wash dishes or fold hot laundry.
I get the profuse sweating when I am extremely weak. I look like I just washed my hair. It is like the profuse sweating before you pass-out. But I have never actually fainted. Although I have fallen several times.
Have they tried Mestinon to see how you react?
Good luck
kathie
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Hi Kathie I forgot to mention that heat does make it worse. If I'm in a weak "zone" I can't take baths or I can go into a full on flop, and if it happens in the summer I pretty much can't do anything, have been stuck on the couch or in bed and needing full support. Well, that was before I had access to mestinon. I'm hoping never to have to experience the worst of the weakness again now that I have that stuff!
T