Quote:
Originally Posted by Nanc
I am struggling and having a really hard time right now. As many of you already know, I have RSD/CRPS throughout most of my body. Every part of me that is affected is flared up so much. I don't know what is going on. This is really bringing me down emotionally too  It doesn't help that I haven't been able to sleep well lately, had a hard time falling asleep last night and then was up at 3 am...ugh!
On top of this, I am having bladder issues. Diagnosed recently with interstitial cystitis and pelvic floor dysfunction...this doesn't help things at all. None of the IC treatments so far have helped. I am scheduled to have a cystoscopy in a few weeks...he will do a hydro distention and take some biopsies. We were putting this off because of my RSD. Thank goodness this dr is very familiar with RSD. I have to do PT for the PFD, but she never heard of RSD or CRPS...I am educating her before we start 
Thanks for "listening", I just needed to get this out...
Nanc |
Hi Nanc,
I am so sorry you are also having a rough go right now!! Lack of sleep can sure wreak havoc with our coping skills and pain threshold.... ugh so with you. I hope you can get in a nap or two today. Currently what have you tried to help - it is hard to offer up any suggestions without knowing what you have already done.. ? One thing I do when my emotions are really down is to put on a pot of water with cinnamon, orange peels, nutmeg or any other aroma's that you enjoy and let it simmer away. I know it sounds silly but, it really does seem to help lighten my spirit when I'm really down in the dumps.
I'm am sorry you are having to undergo the cystoscopy but I hope and pray that this results in improvement for your IC and that nothing new comes up as a result of the biopsies. Do you think added anxiety/stress about this upcoming procedure is perhaps playing into your increased pain and sleep deprivation? My heart aches for you!!
Have you found a new PM yet? Maybe I asked you this before; pardon me if I did.. but, do you have access to a pool that you could maybe just go walk in?
Wishing you a better day,
Tessa
