I think it only makes us "appear" to have normal lives. Yes I am able to walk, drive and work, most days. It does not mention that I have to bathe in a chair, eat mushy foods (I sure miss steak), run my activities around my mestinon schedule, sleep 16 hours on the weekend so I have the strength to go back to work on Monday, trip and fall a lot, slur my words. It also forgot that I cannot go out of the house if the temperature is above 80 degrees. They forgot about the fact that I cannot go on vacation, even a day trip to the shore or be sure of any plans in the future because I do not know if it will be a good "MG day". And the fact that I need help going the grocery store, I can only go up and down the stairs one a day, I can not go any where that includes going up stairs. I cannot take a long walk, ride a bike, go swimming in the ocean. I have to buy bras that hook in the front, shirts that pull on without buttons & hooks, no more high heels or sandals. It is flat mules I can slip on my feet so I do not need to bend down and tie shoes. And let's not forget the urinary leakage, Immodium for the runs, and all the other pills to counter-act the side effects of pregnisone (6 more pills for me).

Even for those of us that respond to mestinon, life is anything but normal

Sharing your frustration,
kathie