This is the last email I had from him...in July.

'Thank you for your email. Yes, I have read through the Hansard report of the debate and I think Iain did very well in raising the profile of the disease in the debate. I will certainly be happy to support him.
Bet wishes
Laurence Robertson M.P.'

Nothing since then. I'll chase him up. If you've got any new reports etc since the debate, email it to me and I'll send it to him. I've politely offered to meet him, I just might start being a little more persistent.

Oh dear, that's a shame about the paperwork for your case...

Bram.