Just a little update Mrs. D. I had to come off the Mexiletine. It was the med that was making me sick. I stuck with it for over 2 weeks. I saw the rheumatologist yesterday and he said to stop it.

I don't know if you recall, I have IVIG treatments once a month. I don't think they help with the neuropathy. However, I developed muscle weakness now and it helps with that.
My rheumatologist wants me to start Retuxin. He thinks it will help with the neuropathy pain and joint pain. The flare ups have been more frequent so I'm willing to try. He said it doesn't have many s/e. I still have to investigate it while they get an ok from insurance.

Do you know much about it?
hopeful