hi, one more thing:

I also went to the Mayo Clinic in Jacksonville, and I was not that impressed. I spent a lot of driving time up ther, 5 hours each way, plus Hotel for 3 nights, and they really did not do any further researc than my doctors locally had done.

So, I really was not that impressed. But again, poerhaps other had other needs, we are not all the same, we have different needs. The Mayo Clinic did the same tests the local doctors had done down here in south Florida,

But, my rheumatologist, actually wanted me to go to John Hopkins, and I had contacted them, had referal and all. I hear John Hopkins has big centers for many different autoimmune disorders.
They are far away, I think if you need to get a diagnosis, it is worth spending a few days in hotell and go to theese ceters, then what they do , the send instructions back to your local doctors