I am so surprised that mayo was not good,
I went to the one in Minn. Good grief I was put through all kinds of testing that was not done by any of the ten doctors and facilities I saw in the mid west. they also had private families who housed you for very little money. I found that through mayo patient advocasy person. I am wondering if that program isn,t available any more. Maybe there is a big difference in the facilities, I don,t know. I sure have recommended that dx facility,, and now wonder if they atr not all that great. At the time I went, I had more or less an orphan disease. Meaning very few of the population had this auto immune problem. Have you since been able to get a dx? Sorry for poor spelling, on my nook,and have some issues with using it. Thank you for telling me. Maybe I should not speak so highly of mayo.