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Old 11-01-2013, 11:15 AM
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Join Date: Aug 2010
Location: South Carolina
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pingpongman pingpongman is offline
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
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I have been getting IVIG for 3 years+. I get a headache sometimes but that's my fault for not drinking enough fluids. I am one of the lucky ones that can take a fast rate so my treatments take 2 hours. I get them about every 3-4 months. What it does for me is improve my overall strength. After 3-4 months I get real rundown and weak. So it gives me a boost. I get 2 treatments a week for about 8 weeks (16 total).

I'm not sure it helps ptosis or facial issues. Do you take Mestinon? As for Imuran it made me very sick and I lost 35 pounds. We switched to Cellcept with no side effects.
Mike
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