Yeah, but can you blame her? (Of course, first I did but I'm over that, she just didn't know better). If you look it up, you think it's not that bad. I did too at first! You think other diseases are way worse because just look it up: cfs or any other disease for that matter. Not that it is necessary to compare, but it strikes me as weird: there is indeed an unnecessary suger coating. It can sometimes even be harmful, when you do not get the help you need (financially for example).

Another example: when I was diagnosed with diabetes (prednisone induced, thank you very much) I was perplexed by what happened! I mean, wasn't I ill already all this time? Now I all of the sudden got "my own" nurse, I got a whole bunch of regular check ups and all kinds of medical attention and even a direct phone number! For my MG i never got my own nurse . I'd rather have a phone number for the times I can't breath than a phone number to say: er...my glucoses is this or that.
Yes of course diabetes is serious, as are many other things. But to me, medical staff too can sometimes take this disease to light.

Ah, well, there are many patients who do get much better with treatment, so maybe they is the bigger part of mg patients? And we are the exceptions. But i agree, even if this is the case, they can put something down like "but some patients still experience disabling problems in spite of treatments".