hi Debbie
Yes, my rheumatologist started me on Prednisone 40 mg x 3 days, 30 mg x 3 days, 20 mg an so forth, then 10 mg maintenance dose daily. On the 2nd or 3 rd day I felt like a "new person". But as soon as the tapering dose started, my symptoms came back. She said to stay on the 30 mg for 2 weeks, then I started tapering. Now I am done with the Prednisone, and I feel really sick with the symptoms.

This all make me think, that I responded to the steroid, there must be an inflamation. And I think the inflamation is in the bloodvessels and it is attacking the nervous system.
But, as you said, we have to live every day as if it was our last day. I will remember that. It is hard though, when the push comes to pull, sometimes we still get misarable. I know I do.
I think I have a couple of weeks ahead of me now with some diagnostic tests
It was very nice to hear your comments regarding how your bad days with symptoms etc and relationships.
I know, that if I feel down and under it is very hard to go out.
I had my sister-in-law call me yesterday, asking how I was feeling. (She also have neurologicalk problems with neuropathy)
She said to me: Always remember, God gave us life. God gave us every single day for us to use. God gave us free will to decide how we willk spend each of those days. So, she said, we do not have tomorrow yet. So use this day, praise him every morning, and thank him for this day,even if your body is aching.
Yes, but it becomes hard sometimes.

God bless you, and thanks for your patience to listen to me, Debbie
All the best wishes for you