Originally Posted by jusf

Hi everyone I'm hoping to find others with similar symptoms!

Since May 2011 I having been having episodes in the morning when I am unable to move or make any sound, for anything up to 4 hours. I have limb jerks, migrainous head pain, tingling, afterimages, photosensitivity etc

Sometimes it starts after I've been out of bed (eg to toilet) or have been talking on the phone, so it's not always straight as I wake up, but it's always in bed. I can't always control opening my eyes but if they're open I can move them around and can usually control blinking.

The shortest has been about 10-15mins and the longest 4hours, and I've had a few days when I've had multiple episodes one after the other.

Afterwards I feel drained, tired, and the head pain and neuro symptoms persist for a while. In between episodes I have varying neuro symptoms and head pain to varying degrees. At the moment I'm getting several a month.

MRI and CT when this started were normal. Neuro has diagnosed chronic migraine syndrome, including the paralysis as a "rare but known symptom". I am now on Propanalol, Nortriptyline and Topiramate (still increasing the dose).

I'm not convinced on the diagnosis but I'm wondering has anyone had anything similar??