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Grand Magnate
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Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Grand Magnate
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Hi Richard!
Welcome to the forum! Glad you found us 
I'm so sorry for all these struggles you've been facing. You've certainly come to a great place for support tho!
In looking at Sandy's visitor page, she hasn't been logged on here since August. I'm sure she'll check back eventually tho.
Since your situation is rather complicated and involving internal organs, I'm real sketchy on knowing much. You seem to have good doctors and I'm sure they are looking out for your best interest.
I know that there are those who have had success with SCS for internal pain. The SCS effect would be a stimulation feeling. I describe it as being like a cat purring  . The only way to know if this would be something you could tolerate of course would be to do the trial implant.
The pain pump has been very effective to those who have pain dispersed throughout the body, rather than pain that is more localized to a certain area. Here are some references to posts that other members have shared regarding the pain pump.
Pain Pump member references:
Here is the testimony of Bobinjeffmo's pain pump:
http://neurotalk.psychcentral.com/post701979-14.html
Here are some post references, both good and bad, to hopefully give you a realistic array of experiences:
http://neurotalk.psychcentral.com/thread144925.html
http://neurotalk.psychcentral.com/sh...945#post841945
http://neurotalk.psychcentral.com/post778075-7.html
Another thing you can do is use the "Search" feature near the top of the page in the bar that runs across the screen (3rd option from right). Type in 'pain pump' and it will bring up prior posts and discussions on these.
Many doctors prefer the SCS over the PP because the PP requires getting refills on a regular basis. When I asked about a pain pump, My doctor said "I don't do the pumps because that would mean we'd have to be 'married' 
It's not unheard of to have both a pump AND the SCS. It sounds like this is what one of your doctors is contemplating.
There are several members here who have 2 SCS's to get a broad range of coverage.
There's lots to think about. Lots of questions too! so feel free to ask anything at all. That's what we're here for.
Rae
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