Ideally, you want a PCP to coordinate the specialists. If yours does not seem interested, pack up all your records, and do some research. In fact someone on NT may be able to help you find a PCP in your area. It took me 6 years to get the group I have working with me. I have an auto immune problem among the issues.
I know this may not be something that you know, but did anyone check your T @ B lymphocytes? These are the cells that fight infection. Sometimes with auto immune diseases, these cells show a great in -balance, or you have them and they are confused as to where to go, and attack you as a foreign object.
This was one of the tests done to me, that really nailed my auto immune problems.
Get and keep a copy of all records and tests. When you go to a new PCP, present them, and see how much interest he or she takes in you. I did this with my physiatrist, and she asked to keep them, and then at the follow up appt. she really did start to address all the issues I had.
You need to feel absolutely confident that someone is actively engaged in trying to solve your problem This was the second post to where Mayo clinic didn't really get to the bottom of it. I went to Mayo in Mnn. and had four extensive days of tests. They did find out what was wrong.

The key is to have all your doctors work together as a unit. Each of my physicians gets a copy of the visits. I do this myself, and bring in the notes myself from the other doctors. When you have multipel issues going on, your don't want one in tune with you, and not the others.
Hope I have made a little sense here. I wish you all the best, and hope you find the help in a good PCP. ginnie