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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Being one's own advocate....
I learned many years ago (while dealing with my dad's brain tumor) that YOU have to be the one to advocate for your own health and well being.
I have a wonderful PCP (other than her not wanting to fill out my RFC or whatever it's called for ssdi) She treats what she can and then refers me to specialist when needed. She will also refer me to someone outside her practice (Emory) if I ask her to. She is very caring and knows all about me and my life and family. I've been with her through her 2 pregnancies and her nurse is also great. All I have to do is call and they are johnny on the spot 
That being said.....my problem is with specialists.......since I only had 'regular' problems before this past year I only went to my PCP. Since then I've had a onocologist, neuro, a foot and ankle specialist (who I had to ask to do a skin biopsy but he agreed) and a recent visit to a orthopedist who said the bones in both feet are fine....the problem with my left foot may be progression of the SFN or tendonitis. He says go back to the neuro and let him treat you. Oh...and let's not forget the 2 pain specialist...one with a dirty office and the other I never saw...just his assistant. With an appoint to come back the next week for shots....really ? Never met the dr and I'm going to let him stick needles in my back or feet ? Nope....rethinking the pain mgmt. dr.
If I could still drive I would be using Emory in Atlanta. Emory bought our local clinic but it's not the same as going to Emory itself.
What a journey we are all on. Some successes and some failures but we keep chugging right along.
Have a good day everyone
Debi from Georgia
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