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Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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For me...when I first got diagnosed I was all over calling it CRPS. I thought, "This is the RIGHT name for it and that's what I am going to call it." Unfortunately...every doctor I have had calls it RSD...and I gave up calling it CRPS. I really don't care what the name is...so long as the people I am talking to understand what I am talking about.
I believe both names fail to really convey what this condition is...and honestly...what name COULD? We are all so similar and we are all so different when it comes to this condition. There isn't any name, in my opinion, that can truly capture what we are going through, dealing with, etc...nothing that can do justice to a description of WHAT this condition is.
Even Kev's FIIKS...while accurately describing how well understood the condition is...doesn't touch on how truly complicated and awful this condition is.
Regardless of the name...I think it's much more important that more doctor's are educated about it...scratch that...that ALL doctor's become more educated about it so they can diagnose and treat the condition early enough to possibly do some good for their patients.
I personally think all the focus on the name detracts from the very important issues that need to be dealt with regarding the treatment of this condition.
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