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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Welcome brookevale :)
I totally understand about not being able to convince dr's of anything. I had to ask for a skin biopsy to confirm my SFN. Mine is severe also.....0 and 0.06 a and c fibers.....nothing left but the pain. I'm shocked someone won't give you pain meds. They supposedly don't help much with SFN and true...they don't actually stop the pain but they do help me mentally I guess. Hard to describe. I take 1/2 a vicodin 4 times a day. A whole one makes me 'high' and I really don't like that feeling.
You can buy Capsaicin cream at the drug store and it seems to have helped many people on here. I used it for 4 weeks as suggested to me by my foot dr prior to diagnosis. He said it would burn....nope....nada....no burn...no nothing 
My only treatment so far is that I'm up to 1,800 mg of gabapentin a day. I don't think it's helping but who knows ? Pain could be worse without it.
I had one visit to a pain dr I really liked (but didn't go back because his office was extremely dirty) and he said with SFN as bad as mine is the only thing that actually might help would be a neurostimulator. There is a site on here for that and you should read a lot of the posts. It has been most helpful to me.
We all understand how frustrating this can be and will be here to support you whenever you need it.
Debi from Georgia
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