I hardly see my PCP. I mostly let my rheumo have control of my care. I get IVIG Rx. in his office. I see him every 3 months. I also see my neuro off and on. I think he believes it is Sjogrens and there is nothing else he can do. He suggested I go to the NIH. He sent all my paperwork. I am waiting to hear back. There is nothing else he can do for me.

I have seen many doctors and I feel everything become more confused with each one. They seem to all have different opinions! For now I am sticking with my rheumo.