Quote:
Originally Posted by finz
Hi Debbie,
What is SM ?
With a few exceptions, it's not about having a certain diagnosis, it's about how that medical condition affects YOU.
My mom is disabled by her Parkinsons Disease. Michael J. Fox has Parkinsons and is starring in a new tv show. The same disease can present differently in different people.
How bad is your pain and where is it ?
Can you function reasonably if you eat every 2 hours ? The SSA may say that there are some jobs that could accommodate that.
What does your lawyer say about your chances ?
As Nicd mentioned, it is often a long process to try to get SSDI. Waiting is frustrating. Hang in there !
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SM is Syringomyelia. A cystic tumor inside my spinal cord. C4 to C7. I have ICP headaches all the time. Pin and needles all over my body. My hands shake every day. I have bladder issues. My pain every day is a 4 to a 6. I can't control by body temp at all. My voice and vision are effected off and on. FATIGUE can be severe. Since June of this year my legs have been having constant muscle contractions. I can feel the electrical plus. You can see is happening. I was diag. 8 years ago with this. Started with paralysis of my legs and virtigo.
With the gastroparesis the doc doesn't know why my body is not absorbing food. Every day is different.
My lawyer had to obtain all my medical records, they said it could take up to 1 year. They said I qualify???
Even if I eat every 2 hours, most days I don't process the food right, so it's only help about 2%. The diet has helped calm down my GI about 3%. But I am still in the bathroom 20 times a day. If I don't eat I loose weight like crazy. The most I lost in one week was 17lbs. I'm 5'7" tall and only weigh 104.
Thank you for responding. I'ts very hard some days to stay positive when your uncomfortable in you own skin.