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Old 11-04-2013, 10:28 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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[QUOTE=Juanitad;1026894]Hi Abby - I've been on IVIG for about 8 years and have tried different combinations and timing over the 8 years. About 2 years ago, I was doing .4 gram/kg of my weight for 5 days each month. It would take about 4 hours per infusion (I'm not a small woman ), but I noticed that it didn't seem to be working as well as it had in the past. After talking to my neuro, we switched to 1 gm/kg twice a month. As he explained it, I was getting the same overall dosage monthly, but in a larger bolus dose each time. This has worked much better for me over the last 2 years.


What is the "standard" for loading doses? is it 1mg/kg or 2mg/kg over how every many days they choose? I get a little less tan 1mg/kg every 3 weeks and will be getting two of those in a row this week... seems like a lot!
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