Quote:
Originally Posted by MegAlfOCon
I agree. I'm 38 and have been shunted since age 6 months. I luckily only had two revisions as a kid at age 4 and age 18 but have had major complications since then including a peritoneal cyst that turned my abdomen into a giant adhesion, so I now have a VA shunt. I realized recently I've never met anyone else with hydrocephalus, who did not have a significant intellectual disability, so I felt very isolated. It has been so nice to "meet" so many people with similar experiences.
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I realized the very same thing and then I took a vacation this summer with some old college friends, and one of them brought along one of her friends who also has hydrocephalus, but neither of us knew it. She's the only other person with hydrocephalus I've ever met who did not have a mental disability accompanying her hydrocephalus. It's nice to compare stories and with a few minor differences, our stories are almost parallel.