Member
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Join Date: Aug 2009
Posts: 642
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Member
Join Date: Aug 2009
Posts: 642
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My neurologist at UTSW in Dallas set me up with the oncology unit at UTSW, but it can be done other places. I originally was looking at Johns Hopkins.
I had the complication of neutropenic fever, which is a fairly rare complication. My counts just got so low, especially platelets, that I needed to have several transfusions and units of platelets as well as precautionary IV antibiotics. I was pretty sick, but bounced back once my body started producing platelets and blood cells again.
After 6 weeks I was released to do any activity as I saw fit. Prior to that I needed to be very careful and was on several meds to prevent infections.
Yes, I can generally do anything I want with a pretty quick recovery time. I do need more rest than the average person, I suppose, but vacations are a go for sure. MG really doesn't limit my life much at all now.
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