Quote:
Originally Posted by Needananswer
Even thou I finished the steroids in July I guess I still had the benefit up until recently. Everything is coming undone and my eyes/energy are not cooperating AT ALL so I am heavily leaning towards giving this a try.
Mesty doesnt do much for me - even for ptosis. 
Re IVIG - I was approved only for home infusions. Do you get it at home or are you all in a clinical setting?
Thx again for valuable feedback! |
I have been getting IVIG every 2 weeks for 2 days for 3 1/2 years. I do not have side effects as long as I drink enough. I go to the hospital infusion center. I still take large doses of other meds but my quality of life is excellent compared to when I started. I recommend giving it a try - you can always decide to not do it. You are approved now insurance wise and you do not know what is given to happen with the new healthcare system in the future.