Hello, I took the Jarrow formula, daily, adjusted for my weight for about a year and a half from 2011-2012. I couldn't see any difference. My B 12 level checked at over 1600 on blood tests, so it was clearly showing up in my blood.

My PN is profound (diagnosed in 2009), but the cause could never be found. I'm not diabetic and MRI/CT Scans ruled out brain/spine issues, and a spinal tap also showed no problems.

My Rheumatologist believes it may have been caused by prolonged use of an antibiotic known to cause PN. I started the antibiotic in 2007.

Should I have stayed with the therapy? Should I resume it? My Duke neurologist and rheumatologist seem to know very little about it. And the only research I've looked at from NIH is fairly old now. It seems if this therapy were successful that it would be more discussed in the public press?

But I haven't read this entire thread. It is very long.

Or am I naive? Probably Naive.

Thanks, ElaineD