Quote:
Originally Posted by NurseNancy
oh my gosh, you have been thru so much.
i would do a whole lot more research on this med if i was in your position and considering it.
you have to weigh the benefit vs the risk.
and ask yourself if your brain if worth it. if i was very symptomatic with my MS and willing to try anything i might do it. but, just because your dr says she "thinks" it's ok...that wouldn't be enuf to sway me. IMHO
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Thank you NurseNancy...yes I've really been thru way too much. I called Dr and told her I wouldn't take it after all. She was ok with it (per her nurse lol). Partly, I think because 2 nights ago I had a fat seizure resulting in a face plant on my concrete floor. Hurt my knee and face. So she has prescribed Keppra and of course, called the DMV. Its just too much sometimes I swear. I live alone and don't have anyone to drive me around. And the idea of bussing it around here (Las Vegas...crappy bus system. In fact, crappy everything). And the thought of Tacfidera possibly giving me severe side effects that "might" go away in a couple of months or might just kill me (yes, PML is fatal once it comes to life) just was the topper.
I do really appreciate everyone here chiming in with their experiences, thoughts, questions, etc. Helps to not feel like I'm in this alone.
Let's see what tomorrow brings.....lol
thanks again
janet