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Old 11-08-2013, 02:53 PM
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Brainstemmed Brainstemmed is offline
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Join Date: Nov 2013
Posts: 39
10 yr Member
Brainstemmed Brainstemmed is offline
Junior Member
Brainstemmed's Avatar
 
Join Date: Nov 2013
Posts: 39
10 yr Member
Default Advice needed on misdiagnosis by HMO

hi everyone...

i have a huge problem on my hands, and none of us needs another problem in our lives, do we?

i have been denied care by my HMO for mTBI and PCS...they are refusing to provide care as the diagnosis by one neurologist states it as a somatism...it's all in my head...he is 30 years old, has stated he never treated anyone with an injury to a brain stem, has told me there are no specialists i can see and that he stands by his diagnosis and that he is qualified to help me...

the scheduler at the office, when i said i was seeking a 2nd opinion from another neurologist told me she thought the 30 year old was "brilliant"...

well, he spent all of 20 minutes with me, ordered not a single follow up test...wrote me a prescription for divalproex 250 mg...then told me via e-mail to double it to 500 mg, and i tried it and had a bad experience and went back to 250 mg...he proceeded to send me a HUGE bottle of the stuff after i told him i could not tolerate it...

my symptoms are sever and match a diagnosis of TBI and PCS...

i have letters from 3 highly trained, highly educated, highly experienced professionals that say clearly, in writing, they believe an injury occurred in my brain stem and / or i have a symptoms related to PCS...

i am frustrated beyond belief, life is a complete struggle on a daily basis and i am unable to function at all outside of my dark, quiet and slow home...

yesterday, i had another doctor at the same HMO refuse to discuss medicine, diagnosis or treatments, and suggested nothing except "leave and get other insurance"...he also stated (loudly, while typing and never looking at me) that we had 20 minutes, to speak up and to go fast...of course, i can do neither...it was horrifying to receive such treatment...i got up and asked "what the fxxx is wrong with you?" then walked out the door...

i believe there is actionable legal issues, and the other party will uncover the e-mail i rec'd from the HMO neurologist that clearly states "i do not believe you have a brain injury"...

i have another appointment with a different neurologist in the same HMO office as the one that does not believe i have a brain injury...for one doctor to change the diagnosis of another, in the same office, seems unlikely...that appointment is one week from today...

this is very serious for me, i do not know what to do...i am petrified that not only will i be blocked from further treatment, that any legal action i take will stop in it's tracks quickly...i am nearly complete debilitated and have been for 6 months...

my wife suggested that i will make a list of my symptoms (extensive and 100% accurately portrays mTBI and PCS) and the letters from the other professionals outside of the HMO...

has anyone experienced this harsh treatment and been denied treatment by an HMO then had the diagnosis changed?

what to do?

i am desperate here...

thank you in advance...God Bless...
__________________
Background:

52 year old with 25+ years of problems associated with Fibromyalgia...

What happened:

while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.

Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...

unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.

i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...


Current Meds:


10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..

legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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