View Single Post
Old 11-08-2013, 03:59 PM
Brainstemmed's Avatar
Brainstemmed Brainstemmed is offline
Junior Member
 
Join Date: Nov 2013
Posts: 39
10 yr Member
Brainstemmed Brainstemmed is offline
Junior Member
Brainstemmed's Avatar
 
Join Date: Nov 2013
Posts: 39
10 yr Member
Default

Have you been through a neuro-rehab clinic for diagnosis and possible treatment ? That is likely your best option.

What symptoms are you wanting treatment for and what outcomes are you expecting from such treatment ?

Please try to leave the emotional angst out. It can easily sidetrack many of us as we try to help. As the saying goes, Just the facts, ma'am.

Why are you taking Ritalin ?[/QUOTE]



Mark:

i have not been to a neuro-rehab clinic...i did not know of such a thing until reading about it here, and none of the folks at the HMO have come close to that recommendation...

i have also spent nearly 15,000 out of pocket in the last 6 months while my income and savings are down to almost zero...i simply cannot afford expensive treatments outside the HMO...i thought i was covered, but apparently not...

of course, i will be changing to another insurance the 1st of the year so that i might be covered by a plan that knows how to deal with brain injuries...

i have been told over and over there is no specialist in this HMO that deals with brain injuries...i must deal with neurology and they feel they can assist me, when we now know they cannot...and will not...

since each brain injury is unique and this is new to me, i am seeking a plan that will benefit me specifically that will promote recovery...

i am seeking relief from any symptoms i can...nausea, headache, memory loss...all of it...

i am unsure what to do...all i have done to care for this is what i have been directed to do by my vestibular therapist that is outside the HMO, she has been amazing, understand and compassionate.

the HMO neuro prescribed Ritalin when i asked for help with unclear thinking and now he will not renew, and did not make a different suggestion, so hopefully next week i can get something from the new HMO neuro. when my prescription runs out, i will be non-functional once again...unable to work or even get up and move around, so i am hopeful they have a reasonable suggestion.

thanks for your help.
__________________
Background:

52 year old with 25+ years of problems associated with Fibromyalgia...

What happened:

while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.

Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...

unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.

i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...


Current Meds:


10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..

legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
Brainstemmed is offline   Reply With QuoteReply With Quote