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Grand Magnate
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Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Grand Magnate
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Hello Keri!
Welcome! 
I'm sorry you've been battling this since a very young age. I certainly understand the frustration in trying every possible treatment without getting relief. The SCS is usually considered to be the last option and this seems to be where you are at.
And yes  you are right in saying that the process of the SCS is creepy to say the least.
I must be honest in saying that I don't really know much about Occiptal Neuralgia, and I'm not quite sure as to where the leads are placed in your situation. Will they be placed at the base of the head, or more toward the C-1, C-2 area?
Let me refer you to the Trigeminal Neuralgia forum where the SCS is discussed in alot of detail. Occipital neuralgia is also discussed here as well.
Here's the link to take you there:
http://neurotalk.psychcentral.com/thread124048.html
Feel free to copy your post over there to see what type of input you'll get.
I'm very interested in the input you'll receive, so please come back here and let us know. You could teach
Our good friend Burntmarshmallow would be one of the 'go to' people to help answer your Q's
Please keep us posted! It's great to have you,
Rae
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