I live in Bucks County. I saw Dr Sergott at Wills Eye Hospital in Philadelphia for the eye symptoms. He suspected MG although my antibodies were negative. He put me on Mestinon and referred me to Jefferson University hospital for an SFEMG for a definitive diagnosis. Dr Racocevic did the SFEMG and it was abnormal and I was diagnosed with MG. I saw Dr Racocevic for a while, he is a neuromuscular specialist. We did pregnisone and IVIG. I wanted more aggressive treatment and the ability to see the doctor more regularly when I had bad exaccerbations. I now see a local neuro. She is not an MG specialist. But she is very good, accessible and I am getting more aggressive treatment. She even sees me on Saturday morning when I am bad.

I do suggest going to see the neuromuscular specialist at a big teaching hospital first to get a definitive diagnosis. The specialist at Jeff only expect to see you every 3 month. They do not seem to want to manage the daily/weekly ups and down. So you need a local neuro to do that.


Let me know if I can be of more help

kathie