Originally Posted by zookester

Oh Gosh.. I can so relate!! I'm so glad your husband has come out on top again and can provide you with much needed insurance; what a blessing! It is a blessing, now if I can afford to use it. We are still hanging on by our fingernails while he works to obtain his degree and tries to make not only his share, but my share too. I don't mean to sound negative, just wanted to be real about our situation. It's fragile.

BTW.. I've discussed MMJ with my provider and they are okay with me using it but, for whatever reason don't themselves write the scripts for it. If things get much worse, I'm going to give it a shot!

I did the same thing long ago and like you found that they don't / won't write that Rx. Just crazy to me, but whatever. Yep, if you decide to try MMJ you'll have to go to an MMJ doctor. I feel pretty lucky that I live in an area that it is even possible. Having a legit place to purchase it has sure taken the seediness and underground feeling out of it. That is good news for those who can benefit and don't want to be in dark alley somewhere trying to purchase it.

If I may suggest a couple of things that make a little dent in my pain that might also help you based on what I've read recently from you. But of course! Please! Medicated compound cream is even better than volteran gel.. that is on my list for my convo on wednesday. Brown's Pharmacy makes one with Ketamine and Baclophen ut oh, I don't do baclophen as I had a horrible reaction to it, but I am anxious to try anything ketamine. (sp?) which I use like a bath on all limbs 3xper day. Butrans is the patch I am on.. haven't heard of it but will check it out for sure.I started at 5mcg/hour but once my arms became symptomatic we have increased the dosage to 10mcg/hr but, I only add the second patch when I can't get pain under control by other means. The patch gave me the same headache as other pain meds for about 2 days, nausea/vomiting lasted almost a week and the fogginess about the same. By the second week I didn't even notice I was on 24 hour med control except that my level 10 pain was much less frequent and my moods (directly related to pain levels) was markedly improved. Physically I was able to do more, sleep also improved from waking nearly every hour to sleeping for 2-3 without waking. Sadly as symptoms spread sleep isn't as good anymore yeah, that stinks doesn't it? I'm a 2-3 hr girl myself... ug. The other thing I can't live without is the lidoderm patches..yes, these are on my list. It's been a while since I've had any and they are a lifesaver at times for sure. without them intimacy would be even more difficult. lol.. they aren't sexy but they sure help with sensitivity for long enough to make it enjoyable sorry if that was TMI. Never TMI, I have had the electric shock in that area too, and Oh My Gawd... OUCH! Sounds like yours is much more prevalent in that area. You should be so proud of yourself that you have found and seek out workarounds.

Oh the muscle aches.. my legs feel like I ran a marathon every single day ugh! I feel for you.. wishn' for a better tomorrow for all!

Tessa