I just got approved for IVIg today and will hopefully be getting the treatment within the next few days. I having been fighting for this for over a year now and finally the approval code comes in!
My doctor said that I should take a baby aspirin the morning of and benadryl and plenty of fluid while I am having the therapy.
Does anyone else that has had IVIg therapy have anything that I should do or look for before or during treatment? So far I am told I can pretty much bet on having a headache as a result.
Thanks,
N1
Quote:
Originally Posted by Nervous1
I finally have a formal diagnosis of autoimmune small fiber neuropathy.
The autoimmune part definitely makes sense because I have the presence of autoimmune D in my body and have had psoriasis since I was 18. Also, the way in the past the noticeable symptoms have come and gone since 2010. I took Humira for psoriasis for close to 10 years and it could have caused the neuropathy. Humira also masked the symptoms...
A skin biopsy of my calf was compared with last years specimen results and the normal population and showed that I had a significant decrease in sweat gland nerve fiber density.
I am still left to wonder about whether I really have dysautonomia, but I did not show the correct signs on the various tests given at Vanderbilt. But, my symptoms were the best they had been in 2 years.
The doctor is requesting IVIg therapy again from Aetna, but they have previously denied me twice.
If there is anyone else on the site that has Autoimmune mediated neuropathy that can share any information with me please do so.
Thanks
N1
|