Member
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Join Date: Feb 2013
Location: NM
Posts: 318
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Member
Join Date: Feb 2013
Location: NM
Posts: 318
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To me it doesn't matter what they call it. I just want to be treated appropriately. I don't want drs saying its all in my head or Im a drug seeker. I want to be treated as a person with a very painful chronic disorder that needs to be taken serious. Yes its complex, yes its chronic. Instead of them bickering about names they need to figure out how to treat it effectively. That is my concern. Call it CRaPS or what ever just treat me appropriately like you would treat someone with arthritis, or some other chronic disorder. Don't treat me like a pariah, or drug seeker. I would prefer not to take "drugs" to manage this pain. I would rather be able to get up in the morning and say wow today is going to be a good day. Not well crud I'm already hurting so how many meds will I need to take today and sorry sweetheart we can't go to the park because mommy hurts really bad. I want to take my sons to the park and climba and swing and slide with them. So tell the researchers to stop haggling on a name and research and find a good treatment that helps me be able to be with my children.
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