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Old 11-12-2013, 12:46 PM
daisy.girl daisy.girl is offline
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Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
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Join Date: Feb 2010
Posts: 258
10 yr Member
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Quote:
Originally Posted by tkrik View Post
*tkrik cautiously raising her hand* ME!

I was just dx this summer with Sjogrens and Lupus. I wasn't 100% on board with the rheumatologist and will be getting a second opinion. However, I was in the ER this past weekend and in addition to digestive symptoms, which is why I was there, I had swollen (and I mean swollen) fingers with a red/purple swollen joint area on one of them and my left eye was so dry it felt like it was burning, not gritty but burning. The nurse said it was Lupus or Sjogrens acting up. So, I am now pretty convinced that I do in fact have them. My current rheumatologist never gave me the results of my tests, which I didn't like at all, and diagnosed me without seeing the test results, just based it on my symptoms, pictures I had of my swollen tendons and joints, and her feeling them as some were swollen at the time of my initial visit.

I will be starting Plaquenil after I finish up the antibiotics for the diverticulitis to see if that helps with both of them.

I do see both a neurologist and a rheumatologist, each for the respective illnesses. My neuro asked that the rheumy send him all reports and tests from my visits. It is not very common that someone with MS gets grouped, if you will, with these autoimmune diseases. There are common groupings but MS is not part of those groupings. So, Daisy Girl, we are the lucky ones, huh?

Hang in there!
Tkrik,
That's what I keep reading, that sjorgrens goes with lupus and other auto immune diseases, but MS is not listed.
It is pretty scary when your vision is so involved!
Thanks for the info, and I hope you find a rheumy you like. I live in a small town, so to find a decent one, I am going to have to drive.....and well, I am just over being sick and basically over everything!!
Daisy
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Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
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