Tomorrow I will have the second EMG since my PN was discovered late in 2009.
It will be conducted by my new Duke Neurologist.

The first one was interpreted by my first neurologist as follows:

1. PROFOUND AXONAL NEUROPATHY: RIGHT AND LEFT PERONEAL AND TIBIAL NERVES.
2. PERIPHERAL NEUROPATHY: RIGHT AND LEFT PERONEAL AND TIBIAL NERVES.
3. RIGHT AND LEFT SURAL NERVE NEUROPATHY.

Since that time, I have not had any progression as far as I can tell. No cause was ever found by the first neurologist, after extensive MRIs of my brain and spine, a spinal tap, etc. No work was done to establish any other sort of neuropathy, either.

My Duke Rheumatologist speculates that the Macrobid antibiotic that I took extensively for years for UTIs is the cause.

Now, what I want to know is if it has gotten any better. I took 50000 units of Jarrow Methyl B 12 for 1.5 years, and I had a slight sense that it was perhaps better.

However at this very minute I have that feeling there is a shard of glass in my left heel. It comes and goes, and lasts for hours. Clearly a nerve that is coming or going? Who knows.

I still can't walk or balance or stand for any time at all. Everything is an enormous effort. My toes are dusky purple from poor circulation due to the nerve damage.

So I'm eager to find out tomorrow what this neurologist thinks. My guess is that whatever he finds, it won't be the beginning of a wonderful cure.

I also had an MRI of my thoracic spine today, because last week a ruptured disk between T2-3 was found on an MRI of my cervical spine. I imagine the rest of my thoracic spine is ok, and only if there is a problem at the bottom,would it affect my legs.

More to follow.,

Hugs Elained