Dearest Angels,

I had the EMG today, and talked for a long time with the doctor. He is baffled about the cause, and wants to find out why I have the PN. He knows that it is unlikely it can be reversed, but he wants to KNOW WHAT caused it, and hopes perhaps it will be something that can be fixed.

He does NOT want to do a biopsy of the nerve. He thinks that it is a demyelinating neuropathy based on the way the nerves failed to respond in the EMG. He says taking part of a nerve will cause permanent damage and if the neuropathy can be treated, that nerve would never be normal if the biopsy is taken.

I'm tired of all of this tonight. I can tell. I keep trying to read the stuff he gave me. And I feel a bit overwhelmed. Honestly, when the PN was first diagnosed in 2009, my biggest fear was that it was progressive, and would get worse. That isn't the case, so at this point, I'm learning to live with it.

He talked about Gamma Globulin therapy to treat me (of the sort that would address the PN,not just the CVID). But he won't know what to do until he can identify the cause of the PN, then he will know how to proceed.

He kept saying maybe it was lead poisoning. LEAD? I don't think so. Well, he KNOWS it isn't lead poisoning, and yet…it seems like something toxic. Now I wonder if maybe the Calcium tablets (or any of the supplement) I took were somehow contaminated? Four years ago, or 5? That way lies madness.

I had the Shingles vaccine: then got PN? I travelled to China, and then got PN? I mean how will I ever know. I'll just do his tests.

Right now, I'm just tired.

Hugs, Elaine