Originally Posted by CeCe55

Hi! I am new to this forum but have been viewing for awhile!
My diagnosis for Idiopathic Small Fibre Neuropathy came in July 2009, based on
my then Neurologists findings at the time. Had extensive bloodwork, NCS and MRI. All tests came back normal with nothing unusual noted. All symptoms at the time seemed to fade gradually and by years-end I appeared to be symptom free. Is this typical of SFN?
Fast forward to the last few months, all symptoms have ret'd and seem to be getting worse.
I have constant tingling and heaviness in arms, hands, legs and feet and lower torso, extreme skin sensitivity to temp changes, especially cold,some burning from time to time and the list goes on.

I am presently awaiting a new NCS and appointment with a new Neurologist as the one I saw prior is no longer in my province. These have been ordered by my PCP, but could take sometime as I live in Atlantic Canada.

I am not on any medication just some supplements (B12 methyl type, alpha lipoic acid, vitamin D and B50 and a Multi Vit.) that I had learned about on this forum in 2009, and again most recently.

I am just looking for some information that might be helpful while I await my appointments. This is a lonely journey as symptoms are hard to relate to family and friends, as all of you probably know! I am beginning to find this return of symptoms very limiting when it comes to daily activities and this both scares and saddens me, not to mention the fast approaching winter weather. Thank goodness for heated carseats!!!!

Thanks for reading this and any insights and advice would be much appreciated as I await my appointments.