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Originally Posted by rfinney
Hmmm, that must be somewhat upsetting . . . to find no one with your disorder. I just did a very quick search and I didn't come up with a definitive hit. I did find this post - might be worthwhile to contact both parties:
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What have you tried in terms of searching? Search engines can be very hard to configure correctly to return the info you need. Have you looked on specific neurological forums, other than this one?
rafi
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If you search on Hudson et al (1978) "Muscular Pain Fasiculation Syndrome", J. Neurology, that should get you THE hit. "Fasciculation" should also yield lots of hits but they will be of little use. The 5 neurologists that I have seen are clueless. EMGs show the fasiculations that we can see anyway and the NCSs are normal, as the article says they will be. I will se if I can get in touch with the 2 posts you refer to. Thanks. SMc