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Originally Posted by IllPn
I was just wondering at what point do you accept you have idiopathic neuropathy. I initially went to two neurologists - one did more blood work when I saw her. I do have stenosis and saw on one post someone was diagnosed with PN due to this... The very first 2 nerve tests I had it did not show the neuropathy even though I had symptoms....
Does it sometimes not show up even if you have symptoms until it really takes hold?
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Yes, from what I have read here others have negative tests but quite severe symptoms.
You should know that even if an EMG NCS or skin biopsy show nerve damage they do not usually explain it. It is very possible to have positive test results and still be idiopathic.
Your doctors are unlikely to keep searching for a reason once the obvious ones- diabetes, alcoholic, hereditary, are eliminated. Many here have been forced to become detectives, looking for toxic exposures, drug reactions, etc.