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Wisest Elder Ever
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Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
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Wisest Elder Ever
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
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Knowing what is causing it can lead to treatment --mostly with IVIG and/or Rituxan.
Knowing a cause you could eliminate it from your future... vaccines, drugs, toxins.
Knowing what is triggering you ..could lead to some changes in lifestyle and use of specific supplements.
But PN is elusive, and if you are at a point of exhaustion, you don't have to do anything further if you don't want.
If you haven't had genetic testing yet for CMT, you might consider that, or not, depending on what you intend to do with that diagnosis. Since you don't react well to pain meds, the CMT diagnosis would only help you get proper pain treatment and supervision.
It is all just up to what you want and need at this point.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
**************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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