I feel for you. Possibly could you seek second opinion. I don't know where in North Carolina you live but if you could get connected to a neurology dept at Duke Medical School or some neurology Dept connected to a teaching hospital they usually are on cutting edge.
The reason I say that is I sawv2 neurologist snd got no answers. I got a referral to the hesdache center at Baylor U medical school. I just started having PN for reasons unknown but doctor I am seeing is very meticulous.
Wish yiu the best