Originally Posted by zookester

Renee,
Please read over this thread carefully and show me where anyone said you "were wrong" or to "stop taking them"?

Yes, you may not react the same way.. and the SCS might have worked for you. Did you not question one of your doctors in this regard? Is that criticism or did you have valid concern about this procedure? Did the mere suggestion of this to you, by your doctor make him less credible? NO, it just means that sometimes even our own doctor's recommendations don't always work for us. Neither is wrong for choosing one way or another but the advice, suggestions etc., is given as "food for thought" to the poster and to the others that are reading this forum. The information might not always be useful at the moment or to that person but to someone at some point it may be.

You yourself posted very brazenly about the need to share harmful effects so that others don't suffer.. so why is this such a problem when we are sharing that with you?

Bottom line:

None of us told you NOT to take your meds. What we did was offer alternatives and tips on how to take it differently so that it may help you better. None of what has been said indicated that you were doing anything wrong or not to do it.

I for one questioned your doctor advice based on things you have posted out of CARING and CONCERN for your well being, but I in NO WAY did I put you or your doctor down. You obviously questioned one of your doctor's advices when it came to the SCS; did you not? Why is that any different? There are plenty of great doctors out there that don't always recommend the right things or don't put all the pieces together.. frankly because we often don't share all the details in such a short office visit or we didn’t realize that the two things have any connection. Example: when I first began taken Neurontin and became very anxious I thought it was just because I was scared and stressed out at this whole diagnosis and pain – I didn’t realize until later that it was the meds increasing the anxiety, if it weren’t for someone on this forum mentioning it as a side effect for them, I would have never became aware and that could have put me over the edge very easily. We can see and hear your depression or thoughts of suicide etc., through your posts - does your doctor? Probably not, if they did and they haven't considered maybe the med combo is at the very least contributing then they are doing you a disservice.

Personally when I try new meds or change dosages I always alert 2 people (my husband and my best friend) because it is easier for them to see changes that I might not. This takes a great deal of trust and can also be very difficult if the need arises to address something.
Regarding life choices; you have missed the issue. DNR orders are not the same as assisted suicide or intentional suicide. I don’t remember anyone questioning whether or not to sustain life when life cannot be sustained on its own. That is an entirely different issue than what you brought up in your other thread.

It is very sad that you feel the way you do.

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