Thanks Nancy,

My MS neuro tried me on Amantidine, which caused some sort of negative reaction, so I had to stop taking it. I'll have a consult with him on the 20th to see where we go from here. He mentioned trying Provigil if the Amantidine didn't work, and at this point I'm ready to try just about anything.

He thought that the bouts of sleepy fatigue were likely due to chronic pain and the exhaustion of the adrenals that it causes; so he also started me on Lyrica for pain.
Unfortunately that medication led to what I think was an allergic reaction (increasing edema in the extremities and face/throat, along with increased muscle pain with each dose), so that was stopped after 5 doses.

I'm not driving very far these days and only when I'm feeling up to it. I can tell when these bouts are likely to happen because other symptoms become more pronounced (blurry vision, heaviness in the body etc). Those Sx are enough to keep me from behind the wheel all by themselves.

I'm just looking for something to get me through until I see him again.

Thanks Eddie,

I too take 2000 sub ling B12 (my blood levels are good & blood cell counts are all good as well). I also take Baclofen and picked up some caffeine pills yesterday to see if they are easier on the digestive system than the beverage.

I've taken 300 mg today and have also downed a couple cups of coffee today. So far so good with the digestion. Only a couple of near nodding-offs this afternoon. The caffeine makes the body shaky though. And dare I say, I'm a little cranky too?

I feel like I'm a bit out of control lately. Not quite around the bend and ready for the Ya-Ya house, but definitely not myself. I'm aware of not making wise choises...but the usual concern regarding consequence is not there; and for some reason I just can't seem to care.
I think that my give a *** is busted.

With love, Erika