View Single Post
Old 11-16-2013, 09:27 AM
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

38 is young, although my neuropathy symptoms did start in my 30's, I didn't recognize them as such. Then I was so afraid it was diabetic neuropathy that I was afraid to tell the doctor my toes were completely numb. The numbness has moved up to above the knees now.
What I did have was clumsiness, high arches, and absent reflexes since childhood, which all turned out to be part of hereditary neuropathy. I didn't actually find this out until I was 47. I am 51 and partially disabled now, I walk with a hiking pole or two and use a wheelchair for long distances with stop and go like museums, airports, etc.

Does anyone in your family have symptoms? CMT or hereditary neuropathy can show up at any age, and many people attribute the pain and disability to other causes- arthritis, varicose veins, aging, etc.

If not then perhaps a treatable cause can be found. Are you just looking for commiseration rather than information? I would recommend reading some of the books out there on chronic illness, my favorite is Sick and Tired of Feeling Sick and Tired? by Paul Donoghue and Mary Siegel. Cognitive behavior therapy has also been found to help a lot of people.

How is your support system? Does your family acknowledge your suffering or dismiss it? This can make a huge difference for you, but no matter the circumstances the fact is this gets to all of us sometime, regardless of how resigned we are.

I just saw that you included more info in the question about heavy metals. I hope that someone who knows more about that will put your posts together and respond more helpfully than I have

Last edited by Susanne C.; 11-16-2013 at 09:45 AM. Reason: Checked other post by OP
Susanne C. is offline   Reply With QuoteReply With Quote