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Old 11-16-2013, 10:50 AM
epicnirp epicnirp is offline
New Member
 
Join Date: Nov 2013
Posts: 4
10 yr Member
epicnirp epicnirp is offline
New Member
 
Join Date: Nov 2013
Posts: 4
10 yr Member
Default First visit with neurologist

Thank you both for your advice and kindness.

She had her first visit with the neurologist yesterday. Earplugs and sunglasses saved the day, and we were able to take the subway, though it was very exhausting for her.

Much of the visit was spent one on one with him giving her an exam, however, I was concerned that he didn't get a clear enough picture of what her symptoms had been up until that point. She told me afterwards that she was very confused and unable to really explain much of what her symptoms had been. The good news is that he administered a thorough physical exam to check for everything else, and came back saying that she had clear symptoms of PCS but that everything else seemed to be alright. He wants to follow up with an ultrasound and an EEG to look more into why she fainted in the first place. We'll also be doing a follow up next week to check on her progress.

Following the exam she came home and had a nap. Upon waking she said it felt just like after the concussion. She was having trouble remembering immediate things, was very confused, had difficulty speaking, and her vision would "flicker" as if a light switch was being turned on and off. I managed to keep her calm and in a few hours the symptoms subsided and she became more lucid and easy going. I'm at a loss for why this happened, but my best guess is that it was a stressful day and the doctor was also asking her to do a lot of physical things (pushing her around, moving her head quickly. possibly she aggravated her injury and that's why she seemed to be back to day 1?)

Our plan is to continue with rest, low stress, plenty of fluids, vitamins, and possibly look into some acupuncture (she's has success in the past) as she continues to meet with this neurologist. She has also started listening to ambient noise / binaural beats and has said it helps to keep her calm after an anxiety episode.

As her caretaker I'm exhausted, but doing alright and staying positive. The main things that I'm struggling with is knowing where the line is between her symptoms flaring up and a true emergency where we need to return to the ER. I know that recovery tends to be one step forward, two steps back, but to see her revert to day 1 was really difficult, and I wasn't very far away from bringing her back down to the ER out of concern for her well being.

Are there any red flags that I should be looking for?
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