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Old 11-16-2013, 10:05 PM
Synnove Synnove is offline
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Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
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en block.
thanks. Interesting. As far as GI, earlier on in the year they sent me to a specialty GI, due to my c/o chest tightness, the first guess was GI. I had the mamometry test done, and it was OK, even though I have felt as if there was esaphgeal spasm. The liquid(water) they have you swallow during the test is just little sips. But it is different when you eat and try to swallow a meal. Any way, the same Gi doctor had me tested with a 24 hour acid reflux testing, where I had to swallow an electrode and have a monitor for 24 hour. It showed super gastric reflux. And at the end he sent me for gastric emptying study, it showed gastrophoresis. So YES, autonomic neuropathy in GI. also causing a almost constant backflow of acid, due to slow emptying. But I sort of had this treated with Protonic 40 mg twice daily ( Yes, too high a dose, but doc sais I must) And too bad for me this again is causing poor uptake of Vit B12, and it is low, so I am just in the process of getting some Vit B12 IM ordered for a while.
That being said re. GI issues. Cardiac, I did have work up, but I think they did not think of this Autonomic neuropathy,I did not think of it eighter.
I just went to cardiologist a couple of weeks ago. He started me on Norvasc small dose, 2.5 mg daily. He said, this is not for BP( as normally it is given for) but as a vasodialator (for an anti anginal effect) (just like Nitro)
He said to try rhis come back 2 weeks to check on effectiveness. Perhaps this doctor was thinking in the same line as you en bloc. But I did not know, I have just been taking it routinely in am, and not as needed. And I have not noticed any relief, I think. Exept, one day, my pressure was loe in am and I did not take it. Pressure better later on, and I was actually having chest pressure, so I thought, I will go ahead and take it, it did help then.
I have had developed orthostatic hypotension in the last few weeks, and this is new. I will tell cardiologist this on next visit.
So, now all theese things seems to fall together.
I will also have a sleep study done, (due to autonomic problems with waking up seighs and strange possible sizures.
I had a 72 hour EEG but during that time, I did not have any episodes of that.
So, enbloc you think this is cardiac. Well regarding the vascular spasm,
I am also being treated for vasculitis, so this is possible. I have Levido Reticulitis. This is what brought me to the doctor last year, and got all theese problems with wasculitis and autoimmune problems.
So, I will hopefully have all theese thoughts brought to cardiologist, and the neurologist( I was thinking I might need some meds for theese chest spasm)
I will also bee seing a new neurologist re neuropathy treatment.
Thank you for this help
Synnove
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