Member
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
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Member
Join Date: May 2009
Location: Pennsylvania
Posts: 221
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Iam so sorry I feel the same as you, that my body is falling apart and it to seemed to have all started with the RSD
So I started with full body rsd then when I thought I was starting to feel a little better my back started having lots of pain to find out my disks are herniated then just by chance my doctors found that I had thyroid cancer, with the removal of that i now have hypothyroidism when I started recovering from that I was diagnosed with sarcoidsis in the lungs and liver with treating that I was then diagnosed with gastropresis which half my stomach is dead so I have to manage my food with liquids its that or a feeding tube. Again i thought I was making head way on everything by managing them all to be just diagnosed with AVN, avascular nacrosis in which iam not getting enough blood flow to parts of my bones so they are slowly dieing my left ankle joint is already partly dead so has fractured and the ligament is torn my doctors want to see if I can manage with just managing the pain if not then will look for bone grafts or a whole new bone implant. Iam going to have a bone scan and will see how far along its getting in my hip and knees compared to my ankle.
Just like you I have no idea what I did for my body just to be falling apart the way it is at this rate at only 26 whats next but for my head just to fall off lol.... I honestly dont know what to do to stop my body from getting more issues as even though because of the rsd I dont do much my body acts as if I abuse it.
Iam with you Renee, Pain free hugs!!
Samantha
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