There are not many autonomic specialists out there. The Mayo Clinic has the most extensive autonomic testing, but it sounds like you have already had everything diagnosed.

Treatment is limited and symptomatic. You are already addressing your primary areas of concern...except maybe a urologist.

Hopkins have great neurologists and rheumys, but they do not have a good autonomic specialist. My neuro there sent me outside the Hopkins system to another autonomic specialist in Columbia MD. I'm only semi-impressed.

It doesn't sound like they have identified the autoimmune component. Have you had any testing for this? What are your most pronounced autoimmune symptoms? Once you identify this, you may find the best care at that type of "center"...like the Sjogren's center at Hopkins, or Lupus center, etc.